Waiting... and more waiting

 We are stuck in a cycle of waiting. 

Waiting to find out when he will go to Christchurch hospital for more tests, waiting for results, waiting for a new diagnosis, waiting for a plan, waiting for appointments with different specialists, waiting for a family unit accommodation, waiting to see what affect Covid will have, waiting for change. It's like groundhog day. First in Palmerston North, now in Christchurch. We have been waiting in hospital for 12 weeks now. 

While we wait, Dee continues to get worse. In the short time he has been in the spinal unit he has lost almost all strength in his right hand and arm, severely limiting its use. He is really struggling to wheel himself around in his chair on any uneven ground now, but doesn't want to give up his manual chair and loose all strength and mobility in his arms. His room mate is constantly telling him to get a motorized chair after watching his physical struggle getting around. But, you know... he is stubborn! 

Dee is feeling very frustrated by the lack of direction. We all are. 

We trust God. We know he is here with us, but we are tired and really struggling with it all.