For the first time since November we have heard talk about potentially going home!! What a prospect, getting Dee home to be with his family again! WOOP WOOP!
Of course, there is SO MUCH to do before that can happen! But the fact that we are actually hearing talk about this, is so hugely hopeful!
Palmy have basically determined that they will not be able to find an official diagnosis for him outlining a cause to the paralysis. We are going to try a cancer drug treatment, but there are no further ideas about treatment plans after that. Then he returns home to resume life with his new condition.
We have been contacted by Mana Whaikaha to setup a meeting with our 'connector' to discuss our needs and the next steps. We have also been contacted by our social worker to set up a whanau meeting with all the parties involved. This is a big deal as it is the first time this has happened. All the doctors, occupational therapists, physiotherapists, our Mana whaikaha connector, social worker, etc all come to that meeting to discuss the goals and action plan. The likely timeline for this is later this week... around Thursday he thinks. We will visit with the doctor on Monday, and hopefully with our Mana Whaikaha Connector too.
We would like to ask to go back to Burwood for a few weeks before coming home, so he can learn how to manage himself. Learning like; changing his own catheter, rolling and pressure movement techniques, skin management, tips and tricks for mobility, home modification aids, etc. This is their specialty and they are really good at what they do there. Also, the spinal trust is located onsite. They are critical in getting you prepared for a life, outside of hospital, with a spinal injury.
Also, how do we get the house ready? What equipment and modifications do we need? How will we do it? When will it be done? Will we get a full-time carer? Who will that be? How will it all work? Ahrrrr... so many questions!
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